Friday, June 24, 2016

The EEG

June 14:  After 6+ years of having dozens and dozens of absence seizures per day, the last few months Ellie's seizures have dropped to almost zero.   Even in Europe when our routines were off and she was often very sleep deprived, we hardly noticed any.   The neurologist was hopeful that she was finally outgrowing them (the normal course of her type of epilepsy).  This thought got us very excited and we started having grand visions of her having a normal EEG today and us starting to wean her down from her anti-seizure medication.  

Alas, it was not meant to be.   She still had at least two seizures during the procedure, which means that, yes, her medication is more effective than it's been in the past, but she still has childhood absence epilepsy and it's not time to wean her from the medication yet.  

<sigh>

After that it was time to go home and deal with the car.   Glen actually stayed home from work to help the process.    It was a looooooooooooooong day of ongoing car issues and other worries.   

In the meantime one of our favorite missionaries was in town visiting with his mom and asked to come visit.  We felt very honored that he would choose to come visit us and I was disappointed that I could not be home when he came.   

We love Elder Perkins!   

The evening  was one of extreme unpleasantness that I shall  refrain from recounting in this public forum.   Let's just say that it was rather hellacious and it, combined with my extreme lack of sleep from the night before, meant that I was not in my best form for dealing with it all.  


****************************   

No comments:

Post a Comment