Wednesday, March 7, 2012

Boring Room?

  • Spencer's ANC is still 0 and the docs informed us today that each round tends to get a little longer and that we shouldn't count on his counts rebounding as quickly as last time.  :(
  • The appetite stimulant (that is related to marijuana, but apparently is not addictive and not a narcotic) is not working yet.  He's still eating okay, but it's definitely not the kind of munchiness they told us it would cause.  His weight is 56.5 kg.
  • We took our trip to National Children's Medical Center today.  It's a longish drive in a somewhat unpleasant part of DC, the parking was insane, and the hospital hugely busy and imposing....but  members of the BMT team  spent over 3 hours with us, including a tour of the BMT unit.   It was comforting and disconcerting at the same time to hear everything about bone marrow transplants laid out before us like this, but we do feel like the care there will be good.  We still plan on touring another hospital or two, but pending anything earth shatteringly different at the other hospitals, we'll most likely stay at Children's just to stay close to home. 
  • Spence got a packet of cards/letters from the Primary kids in our ward and this is one that made us smile...

Except Spence isn't quite sure what she means about being without his family, since he's had either a parent or aunt in his room almost every moment of the last 2 months...  :) 


All the adversity I've had in my life, all my troubles and 
obstacles, have strengthened me... You may not realize it 
when it happens, but a kick in the teeth may be the best 
thing in the world for you.
- Walt Disney


K said...

Love the picture! Hope his ANC comes up soon, so he can go home!

annalisa said...

I hope your other hospital visits are informative.

I like the letter the girl wrote. It's cute :)

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